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My number is generally 8.0 and I always get two units, unless my Hgb has dropped into the sixes. Then I get three.
I was just transfused at 8.3 because I was somewhat symptomatic. And I knew, if I waited another week, I'd be in the low sevens and feeling like crap.
I find my symptoms (fatigue, shortness of breath, all the usual stuff) do not march in lockstep with my hemoglobin level. But when I'm getting down in the sevens, I usually can tell based on symptoms.
Take care!
Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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