View Single Post
  #25  
Old Thu Feb 2, 2012, 07:19 PM
Lisa Z Lisa Z is offline
Member
 
Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
Cherie

I live in the Philly suburbs and when I was getting transfused, the threshold my doctor used was 8 for hgb. I often was able to go to low 7's however. I ended up using Exjade for 6 months and then went off it. My iron ferritin was only around 1300, but I wanted it normal. The exjade made me mildly neasus for the last 4 months I was on it. I justs had to go off it, but by then I was down to around 450 and then after I went off it, my counts went to normal anyway and have remained there. I am transfusion independant now, but if I had to chelate again, I guess I would - just to get rid of the iron, but it wasn't enjoyable and I also work full time.....
I also was concerned about the dates on the blood.......
__________________
Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
Reply With Quote