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Old Thu May 5, 2011, 06:44 PM
Laura Laura is offline
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Join Date: Aug 2006
Location: Minnesota
Posts: 433
Quote:
Originally Posted by Neil Cuadra View Post
Laura,

Gut problems after a matched unrelated donor transplant sure sound like graft-versus-host disease to me, so a transplant specialist or GVH specialist would seem like the appropriate first stop. A GI specialist who is not familiar with transplants will not know what to do.

The fatigue may also be transplant related, so again I'd talk to a transplant specialist.

Cleveland Clinic is an excellent choice.
Here is the kicker with that statement. Original biopsies showed both GVHD and CMV. Recent biopsies show neither. However, I am still on Budesonide so would this mask that? My transplant dr says it has NOTHING to do with transplant. GI wonders if the radiation damaged the nerve receptors? Or if it is GVHD masked by Budesonide? That is why it is so hard to decide what to do.

If I should truly seek out the advice of another BMT center. Than I want to go to the absolute best.

I originally choose Cleveland Clinic because they are the second best for GI. Surprisingly Mayo is first........

Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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