[Julianna]

Hi Hopeful. Yeah they did find a cytogenic abnormality. But it is in the low-risk category at the moment. I have bits missing and also an extra. They said that having low platelets from it is rare... but I think, crumbs... this whole thing is rare! They thought I had the platelet disorder (ITP) but didn't repsond to the immune-suppressive treatment for that. So now off Prednisolone altogether (thankfully! ...horrible stuff) and have to watch and wait, with my platelet count considerably stable, even though low.

Have to wait another month to see my specialist again. (Too many patients, not enough Doctors!) My Hemo just said to get on with my life while I can. I can understand that, because I have lived with counts like this for months now... so why change anything. Will take a next step, when and if it needs to happen. My Hemo is 2 hours away... so have to keep in close contact with my GP.... and educate her at the same time! Isn't it funny that we tend to know more about our health (this condition) than and GP! Need to be on the front foot with that though. Keep an eye on any different syptoms.

Thanks for replying. So great to talk with people who understand the jargon!

Jules