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Old Sat Oct 21, 2017, 11:21 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Rich,

I think that this question unfortunately is answered with the "results may vary" by individual. I have seen some people on the forums who have been on either dacogen or vidaza for several years and others for only a few months. The fact that you are responding is usually a positive indication for longer term success, but the truth is that any number given by the doctor is an estimate based on their experience, research, and expectations based on your particular case.

As Lynette mentioned, there are times after the initial normal dose phase that a reduced frequency and dosing schedule has helped limit disease progression and improve quality of life.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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