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Old Sat Jan 30, 2021, 03:04 PM
shadowii shadowii is offline
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Join Date: Apr 2019
Posts: 52
Quote:
Originally Posted by Neil Cuadra View Post
I'm shocked and disappointed to learn about your dad's relapse.

Monosomy 7 is common with MDS, and is usually an unwelcome sign. But for that reason, researchers have put effort into studying it.

Outcomes are generally better when there are only 1 or 2 genetic mutations, compared with what they call a "complex karyotype" with many mutations, but it also depends on the specific combination. The statistics that help doctors determine a prognosis apply to overall groups of patients, but not necessarily to any one patient.

Please let us know what the doctors recommend now.
How do you think we feel?
I'm trying to stay positive (my aunt who is a doctor was the one is gave me those two reasons to be a hopeful) and know that there are salvage therapies and possibility of second transplant (have seen success stories on this forum), but the odds seems so much worse than first time. (plus dad really doesn't want to do a second transplant and I'm a little afraid of what he will wont let happen)

and now that ive read about monosomy seven i feel worse

Last edited by shadowii : Sat Jan 30, 2021 at 04:14 PM.
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