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Old Tue Feb 16, 2021, 12:19 PM
shadowii shadowii is offline
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Join Date: Apr 2019
Posts: 52
welp looks like we are going with Vidaza

But as usual Dad's body is being weird even the doctors admit he never has normal reactions to the any of these treatments.

They not even sure that this is technically a relapse; the symptoms are different they think the graft might be failing two years out or that he got a completely different mds in reaction to treatment.

they hope the vidaza could put him back in remission and improve the chimerism for a few years
I have seen examples of that working for years like DanL and Ballie (yes I am aware of Ballie's eventual passing but I would take four years to four months)

but they are only giving it a 30-40% chance of success and we have had such bad luck already (which maybe I shouldn't say since people have died from transplants right after or within a rough few months and we are nearly two years out but its just hard to feel lucky right now)

he is very frustrated and I just dont know what I can do for him
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