[Shazza]

I've recently discovered that I've been neutropenic for 15 years which is longer than I initially thought (& wrote in previous posts).

2 years ago, 2 separate BMB's revealed hypocellular bone marrow.

Last week at my check up I was told that I have been categorised as having ICUS (idiopathic cytopenia of undetermined significance). Most information I've Googled on ICUS has been written fairly recently. It appears this is a new category - A 'not quite MDS' condition.

I don't have genetic abnormalities - well not any that have been identified yet. I'm told that as new tests are developed my samples are analysed for genetic mutations which may identify a MDS.

I've noticed there are a few people on this forum like me with unexplained low blood counts in 1, 2 or all 3 blood lines, hypocellular marrow & no cytogenetic abnormalities. Has anyone else ever been given an ICUS diagnosis?