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Old Sun Jul 3, 2016, 07:43 AM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi - aside from the numbers, how's your mother feeling?

In addition to the medications DanL mentions, i was also told that GVHD can also consume platelets - and that platelets often take a while to recover in any event. Mine hovered around 20 for nearly six months and did not start to go up until after I was given Rituxin to combat GVHD - they are still only around 100 nine+ months out. It also took me longer generally for counts to recover due in part to the number of stem cells I received in the transplant and because I had mylofibrosis that made it harder for the stem cells to "find a home."

If she is disease free and 100 percent donor as it sounds like - then maybe time and tweaking medication will do the trick.

best wishes,
paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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