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Vidaza didn't work for me
After four rounds of AZA (Vidaza) my doc has made a decision to stop the treatment as I have more leukemia cells now than before the first treatment five months ago and the treatment made me so sick and uncomfortable. My counts have never recovered since consolidation last September, but when I made "dysplastic remission" in November, I was hopeful. So now, with ANC of 0.11 and platelet TRX every few days, I'm starting to be even more afraid than when I was on that horrible AZA. For now, it's bloodwork twice a week and TRX as needed. The stats say this is sustainable for +/- 6 months. Do you know different?
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DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
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