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Old Sat Jun 18, 2011, 03:34 PM
Sally D Sally D is offline
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Join Date: Jul 2010
Location: Fortuna, California
Posts: 10
Smile Medicare Plan D

Thank you Neil, for your excellent, expert advice on our dilemma with Medicare. We are marshaling our resources for a level three appeal before a judge. We just got an interesting court case from Medicare Rights, from New York called "Layzer vrs. Leavitt". The lawsuit claimed the plan should cover the drugs requested even if not listed on the FDA or the compendia. The suit was settled on March 7, 2011.

I haven't researched Prograf on the forums, but for me it creates many fewer side effects including kidney problems, than Cyclosporine.

You seem to be at a disadvantage if you have a rare disease. I feel so grateful that my counts are stable, I'm feeling energized again and can carry on with life.

Thank you again,
Sally D
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Sally, diag. VSAA summer '08, ATG and Cyclo. Benign brain tumor 9/09 removed, relapse SAA, treated 5/10. Good response plus Prograf.
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