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Old Wed Sep 21, 2011, 07:37 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Cycle 2 began today

Cycle 2 of my husband's Sapacitabine clinical trial began today. After his low point from the drug two weeks ago, in which he had to have his first platelet and blood transfusion, his numbers were up significantly today, and he hasn't needed another transfusion. The doctor seemed cautiously optimistic (my term, not his) that perhaps we are having favorable response, even though he admitted it was way too soon to tell. He said even the bone marrow biopsy done today won't tell us anything yet.
But so far so good, and, other than the hair loss (which seemed to surprise the doctor, though I had read it could be a side effect), everything is rolling along.
We even got approval to go to our grandson's wedding this weekend and to a car show in Biloxi in October. He just wants us to come and get labs and blood and/or platelets, which will probably be needed since it will be the low point again, the day before we are to leave for our car show trip.
It's so good when we get good news for a change. Thank you, Lord.
God bless all of you fighting this disease.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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