Quote:
Originally Posted by m mindas
I also am moving to a SCT after horse ATG in Feb. 2010. However, I did not get any response. My platelets are not stable, Hemoglobing goes down slowly, but surely and WBC are about 1.7 most times. I am fearful of a SCT and not sure why another round of ATG was not recommended. I am hopeful about a possible cure with a SCT, though. I know it is a hard time at first, but in the end we may be rid of these diseases! I'd love to know how you do with your continued treatment
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So are you getting transfusions regularly? How does your doc feel about your status as recipient of sct?
I am on tacrolimus now. waiting to get other opinions about needing bmt or still waiting to see if my numbers may still rise over next 6 months. Seems like its inevitable getting bmt--now or later. It would be wonderful if its successful to be rid of this disease.