View Single Post
  #6  
Old Mon Aug 9, 2010, 12:05 PM
susansr susansr is offline
Member
 
Join Date: Feb 2010
Location: Boston, Massachusetts
Posts: 49
thanks for hopeful thoughts!!

Quote:
Originally Posted by Hopeful View Post
Hi Susan,

I think it is too early to jump the gun to a transplant. At 6 months post ATG, my numbers were very similar to yours. It took me 7 months to break through 40 with my platelets. For others it is even longer. I am still on cyclosporine and my platelets are still ssllllowwwwly climbing, now 20 months post-ATG.

Patience is key. If you have had a response (i.e. you were transfusion dependent and now you are not), I'd give it more time. Are you taking and tolerating cyclosporine?
Did your doctors put any time limit when to decide the period of "wait and see"was long enough & time to reevaluate treatment plan? One doc said to move ahead with transplant while other said to wait 6 more months; as you recognized the importance like him that I've been transfusion-free for 3 months and tolerating tacrolimus fairly well. Maybe its my age being 54 while you are 43. Don't know. Also, if I'm fairly healthy now aren't I a better candidate for bmt?It is so risky having bmt.
Reply With Quote