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Old Fri Apr 17, 2009, 05:12 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Ferritin

Hi Chris,
You know we have about 5 L blood so tests really don’t have any impact on our haemoglobin.

Good with EPO treatment but it is strange that they don’t look at your relative's own EPO production because it is well known the response is better when the patients own EPO production is low:
http://bloodjournal.hematologylibrar...full/106/3/768

I don’t know if the EPO test is expensive but the drug is expensive like all treatments for our disease .

You should follow the platelets carefully – most patients manage very well with platelets more than 50,000 but they can be dysfunctional and then the patient can bleed even if the count is more than 50,000. It is complicated with Aspirin medication in a MDS patient.
Kind regards
Birgitta-A
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