[squirrellypoo]

Originally Posted by Julianna

Do any of the ladies here have issues with their periods? I've had an ovary removed because of endometriosis several months ago. My platelets were on the low side even then. And now a familiar pain is back to haunt me! How do I know that I won't one day bleed out inside?

Is the pill the way to go? Any thoughts? Experiences.... ?

All I can really tell you is my experience - I was already on the pill when diagnosed, so they had me stay on that through all my transfusion-dependent time, apart from when I was undergoing IVF to freeze embryos pre-transplant. My haem dr told me that if I ever had any super heavy periods, I should tell her right away and they could give me a pill to stop my period altogether.

When I was having my transplant and for 5 months following it, I was on Norethisterone 3x per day to stop my period, and that seemed to be fine for me with little side effects. BUT the moment they took me off it, I had pretty severe hormonal and sexual problems that are only now being seen to by a gynae/endocrine dr specialising in young women who've had chemo. And he says that, because of my complex hormonal issues from before the transplant (polycystic ovaries being one), Norethisterone was a terrible choice to give me to stop my periods and other things would've been better.

Soooooo with your also special hormonal background, I would ask your haematologist about the different pills to stop your periods but MAKE SURE they refer with a gynae/endocrine specialist before prescribing anything (and also perhaps check your FSH/LH & estrogen levels before and after). The last several months could've been so different for me if someone had asked the gynae dr first instead just giving me the default "period stopper" during transplants!