|
A similar journey
Dear Caroline,I have been down a similar path.I started with MDS 5 years ago,for the first 2 years it didn't worry me too much as my Haemoglobin was good even though the others kept dropping.Unfortunately I had a cancer operation which caused me a lot of grief and kept me in hospital for 4 months as well as causing all my counts to spiral down.For the next 12months I was transfused 2/3 times a week before I lapsed into AML.I had the induction therapy plus the 2 consolidation therapies,the results were very good and for the next 8 months I was extremely well,did a brisk walk of 6klms daily and all my counts except the platelets were excellent.Unfortunately I had an accident and cut myself which turned into an ulcer and cellulitis.Strangely my counts had a big fall dropping vertially overnight and kept falling.4 months after the accident I lapsed into Erythroleukaemia which I had FLAG CHEMO but only the 1 treatment.My first BMB was clear but the second which I had last week was endorsed suspicion of early relapse.My haemoglobin is pretty close to normal,my neutrophils just in the normal range and platelets struggling at 42.The good news is that like you I am feeling very well and enjoying my life but I think everybody with these complaints should be very careful when doing any work where one could have an accident.Don't give up hope,pray to the Lord and hang in there.
God Bless
Brian
|