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Old Tue May 7, 2013, 02:23 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
Also tests to rule out any genetic anemias like Fanconi and Diamond-Blackfan anemia. Even though my husband was diagnosed at 51 yrs, they still ran the tests.

Get all of the test results. Make sure they have checked nutritional levels on B12, folate, b6, copper, iron and zinc. B12 should be at least at 500. Anything below that should be investigated. Any highs or lows in B12 and folate indicate a possible conversion problem.

Look at potential dietary problems with wheat, gluten, additives, etc.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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