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Old Wed Jan 14, 2015, 04:40 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Julianna,

Mucositis is a challenge. Best way to deal with it is to be sure you are doing your rinses, take any and all drugs that they offer for killing pain, and see if they have other options if the ones you are on are not working well, and then work with softer, cooler foods as much as possible. Nothing wrong with a little ice cream and smoothies.

Good luck.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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