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Crystal,
The unknown was one of the scaryiest parts for us. Bc once you know what your up against you know how to combat it. But I'll say that I made myself crazy in the mean time waiting for the answers. You'll get them after BMB/BMA. Please take peace in knowing you cannot solve this in a google search (but I'm happy it may have brought you here!) but as soon as you have the BMB/BMA (bone marrow biopsey and bone marrow aspirate) results you can move forward. And maybe forward will be that things are ok and you just have a good Dr who watches his Pts.
I hope the very best for you and pls let us know.
Ps tii and Neil very impressed by yalls answers and inspired by yalls compassion
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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