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gvhd and feeling like a test bunny.
Hi, just seeing if anyone has experienced gvhd of the scalp? I'm currently weaning off cyclosporin... I'm only on 25mg daily. With weaning I experienced an itchy rash on both my legs and arms. Along with dandruff and an extremely itchy scalp. I seriously thought I had scabies or fleas! I'm day 130ish post transplant.
Another question is my doctor is doing research on a new bone marrow testing machine. He said this test revealed I had 2/200,000 cells had mutation runx1. He therefore wants to do a biopsy (nearly up to double digits). He said if this test didnt exist he'd be completely happy and say I was in remission. I feel like a bit of a guinea pig and unhappy about having another biopsy. He himself said they don't really know what this means as its all new. What would you do?
Thanks, Lisa.
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Now 30yr old. Diagnosed AML dec 2015 (Most likely MDS prior). Trisomy 6. Runx1 mutation also. Had induction and consolidation chemo. Marrow failure ++ so SCT on 21st of March with MUD. Married with a 1yr old!
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