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Hi Suzanne,
I can't speak about MDS since our experience is with SAA, however, there are similarities. I assume your mom is iron deficient or very borderline. As you know, iron is key to making red cells. Arenesp is not effective if you are low on iron. You may want to find out what her iron status is and start tracking that also. Arenesp is a growth factor used to stimulate the production of red cells. It's not considered to be a "treatment" for MDS. It more of a supportive therapy like getting transfusions. Arenesp can help keep red cells at a level that's very livable.
If she is low on iron, I would encourge you to find out what her B12, folate, B6 and copper levels are. These are also needed for good blood production and at times of stress, more is needed.
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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