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Old Mon Jun 2, 2008, 10:31 PM
Suzanne Suzanne is offline
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Join Date: Mar 2008
Location: Long Island, NY
Posts: 48
Geesh, I hope she has a good doctor...I am kind of worried now. He is out of North Shore/LIJ which is listed as an MDS Center of Excellence and they see many patients. I believe her iron tests didn't come back well, he continues to comment that she has iron issues. Their hope is to get her iron up to where it should be an hopefully taper her Aranesp injections off. I have to admit she is SO MUCH better since taking the iron pills. She couldn't get herself off of a chair on Thursday. What do I ask her doctor?

Oh I forgot to add...he asked if she was craving ice and she has been. Eating it like crazy. He said that is a sign of low iron. Do you know anything about that?
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Mom 69 diagnosed with MDS RA 3/08
TLK-199 started 7/17/08 - no response
Vidaza started 12/15/08 - no response
Dacogen started 01/10 - no response
Bone Marrow Biopsy 10/10 - 13% blasts
Bone Marrow Biopsy 12/22/10 - 45% blasts - AML
I have an angel 1/4/11
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