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Old Wed Aug 6, 2008, 03:45 PM
sophia68 sophia68 is offline
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Join Date: Jul 2008
Location: Florida
Posts: 23
Quote:
Originally Posted by Donna E View Post
Hi Everyone,

Dad is still in the hospital. It seems the skin problems were some type of Staph infection and they mentioned something called Impintago (spelling??).
He has been having horrible reactions now to Nupegin (spelling?) and the other day they had a crash cart and about 12 people in his room because his blood pressure goes down real low, he has bad chest pains and breaks out into a cold clammy sweat . . . We are now panicking because we don't know what they will give him now to increase white blood cells . . . Has this happened to anyone out there and if so, what did you then get put on?
He has a sign now outside is room that say Neupogenic . . . no flowers, fruit etc. can be brought into the room . . .
He is very sick so please if you believe in prayer . . . pray for us . . .

Love you all . . .
Donna E.
Hi Donna,

Sorry to hear about your dad. My dad is also currently in the hospital for neutropenia/low bacteria diet, etc., since last week Wednesday. He's having a rough time. He's been on antiobiotics. Blood cultures returned negative for any bacterial growth. Even though he does not have an infection, he is still spiking low grade fevers. His WBC count 1.0. He's having difficulty breathing, is very congested, swollen ankles, hard of hearing. A series of tests are being done today, more chest xrays, scan of his legs and CT scan of his nasal area. He has mouth ulcers/sore throat too. It seems sinusitis/bronchitis/pneumonia are all possible side effects of treatment. Needless to say, after only one treatment with Dacogen, he has decided not to have anymore, he does not want to go through this again.
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Dad (83) DX w/MDS-RARS on 6/10/06.Prev treated w/Vidaza & Thalomid w/o success. Treated w/Decitabine w/some imprv discont after no resp. TX dep as of Aug'10 (evry 2-3 wks). Curr tkg Revlimid since Feb'11. Exjade since Apr'11. Recd lwr dsg decitabine on 6/6/11 in comb w/rev.
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