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Old Wed Jan 18, 2012, 08:41 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John started chelation approx 14 months after his treatment. His FE was at 4469 then. He started with IV Desferral, switched to Phlebotomies but then ended up going back on Desferral because his bone marrow couldn't handle the stress of the phlebotomies. He switched to Exjade when that became available.

He does not tolerate either of those med very well and switched back to smaller phlebotomies every other month and added in wheat grass juice. We haven't checked his FE in since last April so I don't know where it's at right now.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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