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@Hopeful,
I had no idea having a small PNH clone meant it could be immune mediated. That provides some hope in a rather scary time, thank you! My family and I are learning so much and are so thankful to have these forums as a source of help and information.
Also, my parents are definitely planning on sticking around as long as needed after the transplant. We are lucky to have lived close by to Seattle years ago and know many people we can reach out to if need be.
Thank you!!
@Matthew42,
I wish you and your mom the best of luck with her continued treatment, and am glad to see Dr. Young seems very invested in what's best for her. Thank you for the reply, it is comforting to hear more confirmation firsthand from others nearby to this disease. Please take care as well.
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Shroob, Daughter of Donna (age 59); diagnosed AA end of 2021; currently taking prednisone & tacrolimus. Polycystic Kidney Disease; received kidney transplant 2014.
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