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Hi Greg - I've followed your posts over the years and thank you for sharing your experiences. I'm curious why you went down the clinical trial path instead of moving more quickly to transplant?
As far as Vidaza goes - I did one cycle without much success - then moved to transplant - the only drug they gave me was for nausea - I hadn't heard of giving steroids as a pretreatment - but I didn't have any noticeable side effects. Some have done very well with Vidaza - but it can take a while.
Do you have a match yet for your transplant?
Hope you do well going forward - a lot of people are rooting for you.
Best wishes,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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