[PaulS]

Thanks for the interesting response - I was also advised with low risk MDS to wait - and did so until I was needing frequent transfusions, had excess blasts showing up (maybe 8% but probably lower) and a mutation (I don't recall what) that showed up briefly but disappeared before transplant. I tried EPO and Vidaza along the way, unfortunately without success.

My experience with watching and waiting was a slow but steady decline, waiting to get bad enough for transplant - exercising got harder with no hope of long term improvement - I found it fairly depressing - The positive thing about transplant is that it brought hope for being cured - and the prospect of continuously getting better and returning to normal activities - I felt a little more in control - I could maintain a positive attitude, force myself to move and eat - Although with plenty of bumps in the road - overall the experience has been inspiring.

I'm glad you've done well up until now - and am expecting you to fly through the transplant -

Best wishes

Paul