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Very interesting about prednisone - When I was diagnosed I was prescribed prednisone to treat painful skin nodules I would get - and had been getting for several years - the prednisone cleared them up with a high dose and we eventually settled on 10 mg per day which I was on up until the transplant. The prednisone did not cause a rise in HgB. This was a bit surprising since the skin nodules suggested an autoimmune component to my MDS.
We discussed the possibility of immuno-suppressant treatment for the MDS but felt that since the prednisone did not induce any changes in blood counts - that other immune suppression would also not work -
Greg - had you been treated with Campath yet when you were given the prednisone?
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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