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Old Thu May 19, 2016, 11:17 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi Greg - I also had Myelofibrosis - My doctor thinks it contributed to the relatively long time it took my counts to rise post transplant - it was harder for the new stem cells to find a home due to the scarring - he said it would take a year or so to go away post transplant - although the last BMB didn't show any - but he thought that was due to the BMB sample and not necessarily the Myelobirosis away - I'm, however, going with it went away - got a BMB next month, so we'll see.

I'm not sure I understand the reduced conditioning BMT - I received non-myeloablative conditioning due to co-morbidities - otherwise I would have had myeloablative conditioning with t-cell depletion - but transplant centers and doctors all seem to have their preferences - but it is interesting how many different approaches there are to similar problems - its all a bit of an art I think.

Glad you seem to be maintaining a positive attitude - I think that's very important.

Hope the food is good in the hospital -

Best,
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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