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Thank you, Catherine, for your thoughtful reply. I am beginning to see that the "cave" aspect of dealing/not dealing with MDS is very real. It could very well be that my mom doesn't want to worry us - at least I hope that's the reason she's not shared this with the family. This gives me something to ponder, though, and I really do appreciate it and wish you and your husband all the best. (Thank you for sharing the elevated bilirubin info, too).
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