Thu Sep 22, 2011, 08:18 PM
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Member
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
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Quote:
Originally Posted by m garmon
Test results back today. Bone Marrow Blast, %:<5, IPSS score Low risk.
This was the 2nd marrow test. Doctors now say he has Pure Red Cell Aplasia.
They really can not tell us why his blood levels drop 2 to 4 points every two weeks. It was explained today that the MDS is minor, the PRCA is major and it is like something is missing in the middle that makes the blood drop so fast. They want to treat PRCA with steroids but first will send results to another specialist to look at. He is getting to pints of blood right now his level dropped to 7.2 since last week it was 9 this week. Any one know anything about PRCA.
Today was good news & more mixed up news.
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I have PRCA.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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