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Old Tue Sep 27, 2011, 02:18 PM
sophia68 sophia68 is offline
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Join Date: Jul 2008
Location: Florida
Posts: 23
Hang in there and continue to post here for support. You are not alone and will find this forum a great source of information.

My dad will be 83 in November and was dx with MDS-RARS in June 2006. The disease is getting progressively worse now and I think my dad has just about had it with the dacogen treatments. It takes too much out of him. He'll probably remain taking the Revlimid and Exjade and get tx as necessary.

Quote:
Originally Posted by m garmon View Post
My Father In Law is 86, he was diagnosed with MDS a little over a year ago.
He had to have blood every three months up till three months ago then it was every month. For the last six weeks it has been every two weeks. He had a bone marrow test last Thursday, they said the results will be back in 10 days.
We have watched him go down so much in the past year. I fear his time is short. His blood count will drop to 5, 6 or 7 and they will give him two units.
He has a fallen several times in the past month because of light headiness.
He was on procrit up till the end of July. Now he is on nothing.
Is there any drugs that will help at this late time?
__________________
Dad (83) DX w/MDS-RARS on 6/10/06.Prev treated w/Vidaza & Thalomid w/o success. Treated w/Decitabine w/some imprv discont after no resp. TX dep as of Aug'10 (evry 2-3 wks). Curr tkg Revlimid since Feb'11. Exjade since Apr'11. Recd lwr dsg decitabine on 6/6/11 in comb w/rev.
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