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Catherine, thank you for the information on the tests I have an appointment with the hematologist next week and will ask him about them. I had a bad reaction to b12 injections that I asked my primary doctor to administer after the hematologist said they were not necessary. My serum b12 has dropped below the reference range at least 3 times that were tested. The injections gave me intense fatigue and flu like conditions and my serum b12 was off the charts so I went back to the b12 tablets. Serum b12 is one of the tests next week. You mention autoimmunity and it's involvement in hematological issues, I'm very interested in that aspect since I've had several autoimmune issues in the past. Since my doctor goes back and forth between MDS and an unknown autoimmune issue causing my low WBC and low platelets I've been focusing on any kind of autoimmune absorption problem. I'm currently not eating any grains, beans or nightshade vegetables and limit dairy. There is info out there on theories about these foods messing with the autoimmune process - google 'paleo auto immune protocol' if you are interested in it. Since I feel better than I have in a few years I'll stick with this program for a while.
Marlene, Thank you for listing those tests also....
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Tom- 62 yrs old, dx-eosinophilic fasciitis 2004, 1 yr prednisone resolves EF- now low counts, HGB has been ok... EF has been associated with MDS along with AA.
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