|
gina66,
It's good to see your post, and I know Dr. Paquette is excellent.
They found PRCA on my third BMB after they sent the sample to UT Southwestern. I think the prior pathologists were not smart enough to look for it. Now confirmed at UCLA and Cleveland Clinic.
Dr. Maciejewski is also looking into genetic testing for all his patients. He is also looking into every virus in the world as possible causes for bone marrow failures. This study will take time.
BTW; My blood has been running into 15.0 etc. I am only taking Danazol, and am down to only 50mg per day.
__________________
Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
|