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Laura, I echo everything Karen has said. I follow all of your updates hoping to hear that life is getting better for you, only to hear of some new torture. I just wish I could do or say anything to help.
I always wonder if you knew what you know now, would you have made the same decisions, but of course that's not a fair question. You tried so many things before going the BMT route, and that was your only remaining option, so of course you had to take it! We all need to hear both the good and the bad to get a full picture, so your experience has been helpful in that respect. I just hope you find a doctor who can figure it all out and supply the magic bullet to make it better and give you your life back!
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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