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Old Tue Dec 6, 2011, 08:07 PM
Laura Laura is offline
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Join Date: Aug 2006
Location: Minnesota
Posts: 433
Quote:
Originally Posted by squirrellypoo View Post
Thanks for the update, Laura. I've checked in on your caringbridge page a couple times in the past weeks when I've been thinking about you.

I'm so sorry to hear things have only partially improved, and not enough to give you the quality of life you deserve. Who would've thought that the transplant would move you from one aspect of vampire territory (need for blood) into another (aversion to sunlight)? I'm glad to hear your gut is responding to the steroids, though it sounds like a lot of other baggage has come with it. At least you've got doctors at Boston that are willing to try different things, which always feels like progress to me. Hopefully you'll find some real improvements soon.
Hi Melissa,
Thanks for the reply. How are you doing with everything? I think of you often?
Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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