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Hi Beth, I can understand the reluctance to do the upper and lower scopes because they can have some complications associated with them but I don't understand why they don't do the pill cam. I've had this done three or four times and it's safe as houses.
Maybe they don't think he needs it! You know, they want to rule other things out first.
Isn't a cardiac cath more of a problem than the scopes? Have they done a cardiac echo? I would have thought an echo would be a better diagnostic tool for a murmur.
We don't have PAs in Aus and I don't think I would agree to see one in any case.
All the best to both of you.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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