Hi Sandi,
I'm sorry for your reason for being here, an all too familiar story, but you've come to the right place for loads of valuable information and invaluable support. I don't know how I'd have managed without the people in these forums when I had my own surprise MDS diagnosis in January 2010.
Did you see the list of links on this site:
http://www.marrowforums.org/resources.html
I've written about my journey in my blog, linked below.
Best of luck to you and Paul.
Karen
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog
mausmarrow.com