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Hi Sandi, may I suggest you join the Leukaemia Foundations "Talk blood cancer" site.
We have a monthly telephone forum for people throughout Oz for people with MDS and / or their carers. Or are you already a member? I think I remember someone from WA talking on the forum.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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