Quote:
Originally Posted by cme01
Hi Sandi, may I suggest you join the Leukaemia Foundations "Talk blood cancer" site.
We have a monthly telephone forum for people throughout Oz for people with MDS and / or their carers. Or are you already a member? I think I remember someone from WA talking on the forum.
Regards
Chirley
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Hi Chirley, yes we did join in the last monthly telephone forum with the Leukaemia Foundation which was very good. And, I have also viewed the Talk Blood Cancer site, which I will continue to do, but it is not as active as the marrowforum site. I guess thats understandable, given the population of Australia compared to that of America and the ratio of MDS sufferers. I have seen your name around on the forums. Thanks
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Sandi, partner of Paul 62, diagnosed MDS Intermediate 2; July 2012. Pancytopenia, Cytogenetics -7 +8 Chromosomes. Low Blast cell count. Currently on EPO & G-CSF and having great response. MUD found will be admitted to Royal Perth Hospital 27 March 2013 to start SCT process.
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