Hi Sandi
I'm an Aussie too. We're currently travelling around Australia and are in Albany, WA. I was in Sydney when first diagnosed with MDS RAEB2 twelve months ago at 63. I completely understand your initial shock and bewilderment at Paul's diagnosis.
It's hard to know where to start at first, but there is some information out there in cyberspace which can help. The following link has presentations from experts in the field. In particular there's a presentation on bone marrow transplants which might be helpful.
https://live.blueskybroadcast.com/bs...27&MA_ID=13769
It's a good idea to make a list of questions before you visit your specialist each time and tick them off as they get answered!
Like Neil and others have noted, every case of MDS seems to be unique so what helps one may not help another, but it's wonderful to be able to ask questions on this forum and to have people who have been longer on the MDS road come up with suggestions and possible solutions or pathways.
Keep your courage up! Knowledge is power.
Cheryl