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Old Thu May 15, 2008, 10:41 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi,

I think that the doctors take the persons age, general health, rate of decline of Hb into consideration when they decide to transfuse.

I started out being transfused below 70, then it increased to below 80. Now the doctor transfuses at 85. He said that it's because he doesn't want my heart to have to work hard.

Every one is different, some people cope better than others, physically, I mean. I used to be able to manage a low Hb better than I do now. I noticed that I start feeling bad (SOBOE) at about 80 and below. But then I'm 52 have a history of heart failure and still work a physically active job.

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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