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Hi Steve
It will be interesting to see what your BMB shows. I'll probably have a BMB in a few weeks. My Hgb has improved to 7.1 from 4.5 over the last 10 weeks, platelets from 9-10 to 31. My blasts were 16-17% on 5/6/09, with the counts improving it may be that the blasts are now lower. The low dose Dacogen may have reduced them as well as the Thalidomide. I'm also taking Promacta for the platelets, it's only approved for ITP but I was able to get it as a trial, it may be helping the platelets but we are not sure.
You are certainly at a great center for MDS, hopefully the Revlimid can continue to help you fight MDS. Have any of your counts improved with the Revlimid over the last 6 months?
Keep us informed.
Your MDS colleague,
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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