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Hi Zoe and Steve,
We are not sure what the blasts are doing at the moment. My blood counts were at their minimum in July 09, since then they have increased, Hgb from 4.5 to 8.7 using Thalidomide. One theory is that the blasts were actually higher than 36 in the July-Aug timeframe and are coming down - It's a theory that I like - HA. My doctor said one could have blasts as high as 60-70% and still survive with difficulty.
I'm trying Dacogen at 1 infusion/week along with the Thalidomide. My early treatment was with Thalidomide in 2004 and I was a good responder to it.
Not sure if the Dacogen is working, will have to wait and see.
Hope both of you continue to do well in your MDS fight.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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