Callie thank you for the great insight and Neil thank you for the idea about the list of questions to ask the doctor.
Would you guys mind vetting my list of questions? I also wanted to post my questions here just in case someone else might benefit from these questions.
- What is his bone marrow blast count?
- What type of MDS does he have and what is that diagnosis based on?
- If the blast count is higher than 7%, why is he on Procrit(which stimulates red blood cell production) rather than Vidaza which would attack his blast count?
- On the CBC test results, there isn’t test results for the number of blasts he has in his blood(all CBC blood work has blast count listed as DNR). Is there a reason for not testing the blood for current blast counts?
- Is the low white blood cell count caused by the Procrit shots?
- What can be done to boost energy levels and boost quality of life? For example, is drinking coffee ok when energy levels are low.