[ussoccer004]

Originally Posted by ussoccer004

Since starting my soliris for pnh diagnosed in jan 2014, treatments began March of this year, I was always lead to believe I had aplastic anemia. I have gone from hem of 6.9 in jan. To a 10.6 without transfusions just on soliris. My platelets are now back up to a normal range also to 157k from 7k back from 2006. The only thing that hasn't recovered is my white count. Nests at .08 lymphoma at .7. Also anytime I went on prednisone in the past my counts would normalize but once tapered everything would go really low. I went back to my hematologist at uf cancer center and he said that one of my bone marrows from the start was hypoplastic. But when repeated by uf and the nih my bone marrows were normal. So what's up with the white count?

Meant neutrophils and lymphocytes. Not lymphoma or nests.