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Old Mon Sep 8, 2014, 08:33 PM
Ninanna Ninanna is offline
Join Date: Aug 2014
Location: Baltimore, MD
Posts: 5
Thanks Neil! I don't really think too much about being a pioneer, it still feels strange to me.

So a little bit of an update: I am completely off the cellcept and down to 5 mg of Prednisone. Unfortunately I have had some infections issues lately, including pneumonia and fluid around my heart. They had to insert a cath to drain the fluid (about 600 ml worth). It was very painful. Because of this, they are moving the taper schedule up by 5 months. I have another kidney biopsy Wednesday, and if that looks good, I'll stop the Rapamune altogether. So I'll be off everything by early October instead of February next year.

This new plan sounds great to me and I can't wait!
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