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Old Tue Jun 10, 2014, 01:11 PM
krishna krishna is offline
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Join Date: Jun 2014
Location: san diego, CA
Posts: 4
secondary myelodysplastic syndrome

Hello All!

This post is on behalf of my cousin who lives in India: She had AA in 2014 when she was 14 years old. She recieved ATG therapy and subsequently was on cyclosporin for a year and was completely cured. 9 years later she got pancytopenia where her red blood cells, platelets, WBC all dropped. Her repeat bone marrow examination shows myelodysplastic syndrome. For the past 7 months (I think since december 2013) she has been on cyclosporin and there seems to be no improvement. And also currently she has no donor for BMT. Her parents are devastated.

I was wondering if there is anybody else in a similar situation and recieved any treatment that worked?

My heart goes out to all of you who are in this boat.. Here is wishing Good Luck to all you of in your journey wherever you are.

Thanks in advance for any replies.
Deepa
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