[Gary]

Thanks for letting us in on your treatment and thought process!
Very, very good post.

Trying something outside the normal protocol was extremely brave of you, especially 10 years ago when data was even more scarce.
You also had arguably the leading authority on the treatment. I know how encouraging it could be when you have an expert that thoroughly explains things and happily answers all your questions.

I think it's important to continue to emphasize that you need an experienced physician, especially if it is a treatment that's not the standard.

I could imagine you still left a lot out ... I know I can go on forever about my mom's case :-).